Nordic Conference about Turner Syndrom


Date and place:

The conference will take place on September 14–16, 2018 at the hotel Scandic Upplands Väsby in Upplands Väsby, about 25 kilome­ter north of Stockholm. The conference will start at 15:00 on Friday, September 14 and end at 15:00 on Sunday, September 16.

The hotel:

Hotel Scandic Upplands Väsby, where we will stay during the conference and the conference will be held, is a small hotel with a nice atmosphere. It has restaurant, bar and conference facilities. There is also a relax-area with a sauna and a gym.

Address: Hotellvägen 1, SE 194 35 UpplandsVäsby
Telephone: +46 8 517 355 00

For more information about the hotel: Link to Hotel

Transport to the hotel:

The Hotel is located about 17 kilometer from Arlanda Airport. There is a bus from Arlanda Airport to the Hotel and it is also possible to get to the Hotel by taking a comutertrain from the Centralstation in Stockholm.

Preliminary schedule for the conference:

We are planning for a programme with interesting lectures and di-scussions but also time for get-together and getting to know each other and exchanging experiences. Preliminary the programme will look like this.

After opening and introduction on Friday we will have dinner together and after dinner there will be entertainment. On Saturday morning there will be lectures and after lunch we will go on a sight seeing tour by bus to Stockholm. After that you have free time to do what you like and maybe have dinner in Stockholm. Later in the evening we get together at the hotel. On Sunday morning we will have one more lecture and discussions. After lunch we sum up and end the conference.

We will listen to the following persons as lecturers.

Psychologist Charlotte Willfors, Karolinska Institutet in Stockholm, who will tell us about a study about economic behavior and social skills among women with Turner syndrome. Is this connected to whether the X-chromosom the woman has comes from her mother or father?
Dr. Claus Gravholt, Departement of Endochrinology and Internal Medicin at Aarhus University Hospital, Denmark, who will talk about heart issues connected to Turner syndrome.
Gynaecologist Sabine Naessen and midwife Carina Levelind, who will talk about eggdonation. How did it go for women with Turner syndrome who tried eggdonation and how did it go for the children?


The fee for the conference including food, two nights at the hotel and sightseeing will be:

Single room 3 250 SEK/person
Double room 2 550 SEK/person
Three bed room 2 300 SEK/person
Four bed room 2 200 SEK/person
Only conference without
staying overnight at the hotel
1 450 SEK/person


Please use the form you can find on the website of the Swedish Turner Association,, to register. Last day for registration is July 31, 2018.


The participants will receive an invoice to pay the fee for the conference. The invoice will be delivered by e-mail.

More information:

You will find more information about the conference on the website

You are also welcome to contact us by mail


We hope to meet many nordic friends in September!

The board of the Swedish Turner Association
and the organizing committé

Register here!


Program for the conference

Tid Friday
15:00-16:30 Registration/free time
16:30 Opening/welcome
17:00-18:00 Get together
18:00 Dinner
20:00-22:00 Entertainment
Tid Saturday
08:00-09:00 Breakfast
09:00-10:00 Lecture 1
10:00-10:20 Coffee
10:20-10:40 Time for questions lecture 2
10:45-11:30 Discussion in groups
11:30-12:30 Lunch
12:30-13:50 Lecture 2 and time for questions
14:00 Bus to the city
14:00-16:00 Joint activity
16:00-20:00 Free activities / own dinner
20:30-22:00 Socialize
Tid Sunday
08:00-09:00 Breakfast
09:00-10:00 Lecture 3
10:00-10:20 Coffee
10:20-10:40 Time for questions lecture 3
10:45-11:30 Discussion in groups
11:40-12:30 Nordic future discussions
12:30-14:00 Lunch
14:00 - 15:00 Summary / Completion

Register here